Hey there--I'm new to this tribe, glad to find ya! My mom had a right colectomy last Thursday and was discharged yesterday. Last night her doctor called to tell her that she's T3, N1, Stage 3 (cancer spread to one lymph node). She will begin chemotherapy soon. Does anyone know how long she should recover from her surgery before beginning chemo? I'm trying to arrange my flights so that I can be here (NH) as much as needed, but also go home (AZ) when not. Southwest has a great deal on flights until the day BEFORE we go meet with her doctor again, so I'd sorta like to find this out ASAP. Anyone with experience? Thanks!
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Re: Colon Cancer and Chemotherapy
Wed, April 12, 2006 - 9:48 AMHi there,
I had stage 2 colon cancer 2 years ago - in my case, the oncologists and surgeon all agreed that chemo should begin approximately 2 months after surgery.
Have they prescribed a regiment for her yet? Do you know which chemo drugs she will be given? There's been a lot of progress regarding the use of vitamins and minerals (ask about the magnesium/calcium cocktails) to help mitigate side effects.
Keep in touch and don't hesitate to ask for support! -
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Re: Colon Cancer and Chemotherapy
Wed, April 12, 2006 - 10:09 AMHi Chris--They haven't discussed anything yet. Her followup appointment from surgery is tomorrow, and she has her first medical oncology appointment at the end of the month. I'm assuming they're just going to discuss it all at that point, not start her just yet, but that's just a hunch without basis. Good to know about the 2-month thing, though...I had figured they wouldn't want to give her drugs that may make her sick until the wounds had healed. I'll post an update tomorrow. Thanks for the cal/mag tip...I'll be sure to ask about it! And thanks for the support! Are you currently cancer-free? -
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Re: Colon Cancer and Chemotherapy
Fri, April 14, 2006 - 11:07 AMJeau,
Waiting for two months insures that the chemo will not interfere with the healing from the surgery. I am happy to provide support! Having fought the battle and having been cancer free for a year and a half now, I feel that I can be a support and an inspiration for those working through it now. Please keep us posted!
Love,
Chris -
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Re: Colon Cancer and Chemotherapy
Sun, April 16, 2006 - 9:30 AMThanks Chris! I'm glad you're cancer-free. I hope there will come a point where, aside from the recommended colonoscopies and such, you can rest easy and not worry about a recurrence. I also appreciate your cheer, and your handsome smiling photo. :)
As for Mom's recovery from surgery, aside from one awful day of nausea/vomiting on April 11 (the day after she came home), she is doing splendidly and we are in good spirits. She's running around like always. We had a follow-up on April 13 and the pathology report shows her at T2, N1, Stage 3 (whereas the surgeon had told us T3 on the phone, so this a a wee bit more hopeful.) Her surgeon even canceled next week's follow-up appointment.
I've done my best to extract info from the oncology office. Looks like the April 26 appointment is indeed just a consult, and the infusion nurse (the only person willing to give me any answer other than "it depends", to any question I pose...you know how it goes...) told me that chemo will likely begin within a week or two of that appointment. We didn't discuss method of administration (injection, infusion, pills, etc.), but 5-FU or FOLFOX are likely candidates for the regimen. She told me that it is "gentler" than other chemotherapies, with likely side effects of mouth sores, hand and foot disease (whatever that means), and nausea. She was unable to tell me whether effects were likely to be immediate or cumulative. I've decided to take a gamble for my own sanity...I'm headed to Arizona April 25 (unfortunately the day prior to the consult) and return May 16 (likely also missing her first treatment or two). But this will allow me to adequately prepare for a possible 6-month stay in New Hampshire for the duration of her treatment cycle (I had only packed for three weeks, for her surgery).
The primary logistical and emotional complications are my DAD's multiple cancers and medical decrepitude (is that a word?). In fact I think my major near-breakdown thus far was the day after mom's surgery. I had spent the night in her room. Dad returned the next day to retrieve me, but ended up in the E.R. with a severe migraine, which spiraled when his IV site wouldn't stop bleeding until after midnight. (They had actually discharged him while he was still bleeding, then he squirted blood all over Mom's room, then they had the nerve to charge him for a SECOND admission to the E.R.! I raised a good bit of hell and I think they rethought things when I asserted that he had been improperly discharged in the first place.) So I got to see Mom in the worst pain ever (the previous day), then Dad in the worst pain ever (when they applied a tourniquet to his elbow). But, we're tough stoic New Englanders...I'll continue posting as things occur, both as support and somewhat of a timeline for myself, and for anyone who might find it helpful either now or in some future "colon cancer" tribe search. Thanks everyone, sorry such a long post...(should I feel guilty or are ranting and unnecessary detail welcome in this tribe? )
Love, Jeau :) -
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Re: Colon Cancer and Chemotherapy
Wed, May 3, 2006 - 12:05 PM
My mom is going through stage 4 colon cancer treatment right now. She was diagnosed in February 2006, and had to have surgery to remove the tumor. The chemo treatments started 5 weeks later and have been tough on her. Even with using FOLFOX, she's had quite a few side effects, sores in the mouth, numbing & tingling in her hands & feet, not able to deal with cold food, water or cold anything (see link for various symptoms) www.chemocare.com/managing/ .
The worst side effect so far has been BLOOD CLOTS from the port they installed into her. The port is a catheter that is in her chest area (on the left side) which they use to administer the chemo medicine in. She started getting symptoms of redness, swelling & tenderness on the side the port and called the doctor, she was then admitted to the E.R. - hospital critical care unit. They removed the port and have been giving her Heparin, which is blood thinning medicine. -
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Re: Colon Cancer and Chemotherapy
Fri, May 5, 2006 - 6:55 AMHi Audrey! Thanks for sharing about your mom. What are they using instead of the port? What a messy complication...I'm sure that was quite an ordeal and I hope the tenderness is subsiding. Sounds like the mouth sores nd neuropathy began almost immediately, if she just started chemo in, what, April? Perhaps they won't last throughout the entire regimen. Do you live near your mom? I'm sure she's lucky to have you to encourage her... -
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Re: Colon Cancer and Chemotherapy
Fri, May 5, 2006 - 8:05 AMHi Jeau,
My mom started chemo treatments early in March (every other Friday) - they had installed the port just prior to the treatments. Usually the next day (Sat) another nurse comes to the home and usually administers another type of chemo to my Mom in a portable unit that mom wears like a fanny pack. She became weak after the 2nd chemo and had to have Leukin booster shots (to increase white blood cells) and Procrit booster shots (to increase red blood cells). She developed side effects pretty early on as well. She got so weak that the the doctor had her go 2 weeks between treatments. My mom is 79 yrs old.
Last Friday, April 28 she had a 3rd chemo treatment. The Saturday nurse noticed my Mom's symptoms of redness, swelling & tenderness on the side the port and called the doctor, she was then admitted to the hospital E.R. critical care unit. The blood clots were pretty large and could have been lethal. They removed the port and have been giving her Heparin, which is very strong blood thinning medicine.
She just got home Wed and has been only going for blood tests. They need to slowly regulate her with Coumadin, a blood thinner pill. (which she will need to be on for the rest of her life).
Not sure when she will start her 4th chemo treatment - seems they have to stablize her, re-install a new port and she how strong she is to handle it. I'm a good 45 min to hour away from them, but do have other siblings nearby that have been checking in too. My dad's pretty old and not in the best of health either (he's 86) and he's been trying to take her to every dr's appt, and handle daily chores - it's really wearing him out. It's been emotionally hard for all of the family. I do my best trying to help them out but sometimes he's pretty difficult to deal with.
I have been reading alot of different nutrition books. Cancer is a sugar-feeder disease from what I am learning from a book called "BEATING CANCER with NUTRITION" by Patrick Quillin, PhD, RD , CNS. I found this book after hearing this from the doctor "One of the more elaborate and precise machines that test for cancer in the body is called a PET (positron emission tomography) scan devise. It finds cancer by the doctor injecting radiactvely labeled sugar into the veins of the cancer patient, then tracking the labeled sugar". If nothing else, reduction of sugar intake will slow down the growth of the cancer. -
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Re: Colon Cancer and Chemotherapy
Mon, May 15, 2006 - 10:51 AMHi Audrey--
I'm sure your mom must be dreading getting the second port. Now that she's on blood thinners, I'd imagine that it will be much easier this time. Just wondering, is she taking care of herself nutritionally? That book sounds very interesting, although I hope that, in her very weakened state and with less sugar intake, she is getting plenty of calories (huigh quality ones). She's got a lot further to go on this path and needs to stay as strong as she can. Even if she has no appetite or has nausea, I hope she'll pay attention to her diet. And this, of course, goes for you and your dad, too, what with all this stress!
As for my mom, she was due to start chemo on May 12, but it was postponed due to a minor (unrelated) infection that they'd like to clear up before affecting her cbcs. Her first treatment is due to begin on May 24. I'll post details here, but also intend to start a blog on my profile so that I can ramble endlessly as needed. I'm so grateful to this tribe...thank you Chris and Audrey for all your encouragement and insight. :)
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